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Facebook, Cambridge Analytica, and Grindr: Frank Pasquale Talks About Big Data and HIV Disclosure

Recent scandals involving Facebook's selling the data of its users to Cambridge Analytica and gay-dating app Grindr's mea culpa on selling data on the HIV status of its users have raised a lot of questions about privacy and the unintended consequences for people with HIV, or using PrEP, or just searching for information on those issues on social media. I spoke to Frank Pasquale, J.D., M.Phil., professor of law with the University of Maryland about these issues. Pasquale is an expert on the law of big data, predictive analytics, artificial intelligence, and algorithms.

Published
11 April 2018
From
The Body
I’m Completely Open About Having HIV – But Not On Grindr

I have my height, I have my photo, I have what I’m into, but I don’t have my HIV status on there.

Published
06 April 2018
From
Huffington Post
Grindr’s HIV data-sharing has betrayed the LGBTQ world

The gay dating app has responsibilities to the communities it serves. These do not include passing intimate information to third parties.

Published
06 April 2018
From
The Guardian
Grindr was a safe space for gay men. Its HIV status leak betrayed us.

The reason many men feel comfortable posting their status underneath a picture of themselves is because Grindr is considered to be for gay men only. No one needs to worry about their straight coworkers, concerned mothers, prying neighbours, or busybody pastors logging on and finding out something they are comfortable revealing only to potential dates and sex partners.

Published
04 April 2018
From
The Guardian
Grindr Sets Off Privacy Firestorm After Sharing Users’ H.I.V.-Status Data

Grindr, the social network aimed at gay, bisexual and transgender men, is facing a firestorm of criticism for sharing users’ H.I.V. status, sexual tastes and other intimate personal details with outside software vendors.The company said it would stop sharing H.I.V. data with outside companies.

Published
04 April 2018
From
New York Times
Lawsuit Claims CVS Mailings Revealed the HIV Status of 6,000 Clients

A federal lawsuit against CVS Health alleges that about 6,000 participants in Ohio’s AIDS Drug Assistance Program were sent letters in which their HIV-positive status was visible in the envelope window.

Published
03 April 2018
From
Poz
Grindr Is Letting Other Companies See User HIV Status And Location Data

A data analysis conducted by an outside research firm, and independently verified by BuzzFeed News, shows that a popular gay dating app is sharing its users’ HIV status with two other companies.

Published
03 April 2018
From
Buzzfeed
Judge rules mentally-ill HIV patient can be tricked into taking drugs she does not want

The patient, who is delusional and believes doctors want to drink her blood, can be treated on the "basis of deception".

Published
27 March 2018
From
Sky News
UN official questions ethics of sexual misconduct victims in bizarre speech

UNAids chief takes aim at harassment whistleblowers and praises outgoing deputy accused of assault for taking the ‘high road’: Michel Sidibé, the director of UNAids, has attacked whistleblowers who raised concerns about the handling of a recent sexual harassment and assault case, apparently suggesting they lacked ethics and morals. Sidibé made disparaging remarks about employees who have spoken out, while praising as “courageous” the decision of his deputy, Luiz Loures, to step down following an unsubstantiated allegation of sexual harassment and assault.

Published
19 March 2018
From
The Guardian
Irish High Court rules teenager's HIV status need not be disclosed

Mr Justice Michael Twomey ruled that even if the woman was willing to have unprotected sex with the young man, and assume the risks associated with that, then the low risk of HIV in such circumstances, and the fact that HIV was not a terminal illness, could not justify breaching a patient's right to confidentiality, which should only be breached in exceptional circumstances.

Published
13 March 2018
From
RTE
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Community Consensus Statement on Access to HIV Treatment and its Use for Prevention

Together, we can make it happen

We can end HIV soon if people have equal access to HIV drugs as treatment and as PrEP, and have free choice over whether to take them.

Launched today, the Community Consensus Statement is a basic set of principles aimed at making sure that happens.

The Community Consensus Statement is a joint initiative of AVAC, EATG, MSMGF, GNP+, HIV i-Base, the International HIV/AIDS Alliance, ITPC and NAM/aidsmap
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This content was checked for accuracy at the time it was written. It may have been superseded by more recent developments. NAM recommends checking whether this is the most current information when making decisions that may affect your health.

NAM’s information is intended to support, rather than replace, consultation with a healthcare professional. Talk to your doctor or another member of your healthcare team for advice tailored to your situation.