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End-of-life issues news

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Last Gift Study: Community Perspective on End-of-Life HIV Research

In the second of this 3-part series, Sara Gianella Weibel, MD, on behalf of Infectious Disease Advisor, talks with Jeff Taylor, community activist and long-term HIV survivor, about ethical concerns and practical barriers in end-of-life research and how the HIV community will embrace this type of research.

Published
21 June 2017
From
Infectious Disease Advisor
Last Gift Study: End-of-Life HIV Research

Few opportunities currently exist for terminally ill people to participate in HIV research as a result of various cultural taboos and ethical concerns, such as exploitation, vulnerability, and coercion. However, when faced with their approaching death, some individuals may be willing to participate in research that offers no hope for their condition to leave a final gift to their community.

Published
21 June 2017
From
Infectious Disease Advisor
A Second Chance at Death

Long-term survivors, as haunted as we may be by our past, are uniquely qualified to address the practical and emotional concerns of our own mortality. I have arrangements for my living will, instructions not to resuscitate, and know my way around end-of-life care. Moreover, I am already in the practice of telling my friends how much I love them.

Published
02 May 2017
From
My Fabulous Disease
This Unique HIV Charity Has Been Saved From Closure After A Huge Public Response

A coalition of politicians, charities, private companies, and the general public has managed to save the only inpatient HIV centre of its kind from closure, its CEO has told BuzzFeed News.

Published
02 May 2017
From
BuzzFeed News
HIV at 30: 'I've faced three decades since my diagnosis'

Thirty years ago, the human immunodeficiency virus (HIV) was discovered. Here, Paul Clift, who at 59 is one of the UK's longest known survivors, reveals his experiences with HIV - and how attitudes to this once feared disease are changing.

Published
24 April 2014
From
Daily Telegraph
Once, When We Were Heroes

My most courageous self, the best man that I'll ever be, lived more than two decades ago during the first years of a horrific plague.

Published
28 November 2013
From
My Fabulous Disease
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Community Consensus Statement on Access to HIV Treatment and its Use for Prevention

Together, we can make it happen

We can end HIV soon if people have equal access to HIV drugs as treatment and as PrEP, and have free choice over whether to take them.

Launched today, the Community Consensus Statement is a basic set of principles aimed at making sure that happens.

The Community Consensus Statement is a joint initiative of AVAC, EATG, MSMGF, GNP+, HIV i-Base, the International HIV/AIDS Alliance, ITPC and NAM/aidsmap
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This content was checked for accuracy at the time it was written. It may have been superseded by more recent developments. NAM recommends checking whether this is the most current information when making decisions that may affect your health.

NAM’s information is intended to support, rather than replace, consultation with a healthcare professional. Talk to your doctor or another member of your healthcare team for advice tailored to your situation.