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Confidentiality, consent and medical ethics news


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WHO issues ethics guidance to protect rights of TB patients

New tuberculosis (TB) ethics guidance, launched today by the World Health Organization (WHO), aims to help ensure that countries implementing the End TB Strategy adhere to sound ethical standards to protect the rights of all those affected.

23 March 2017
World Health Organization
How to Keep HIV Cure-Related Trials Ethical: The Benefit/Risk Ratio Challenge

While high or unknown risks are a mainstay of early-phase trials in areas like cancer research, cure study participants typically have a safe and efficacious alternative to those risks: remaining on antiretrovirals. Can we justify asking patients who are doing well on antiretrovirals to accept the risk and uncertainty of many HIV cure-related trials? If we cannot, we might need to give up on the hope of curing HIV, or of achieving controlled remission.

22 February 2017
BMJ Blogs
UK Ministers Accused Of "Out-Trumping Trump" Over Use Of Health Data To Track Alleged Illegal Immigrants

The NHS and the Home Office signed a secret deal to hand over addresses of people accused of immigration offences – causing leading charities to warn of serious health risks.

13 February 2017
In the search for an HIV cure, David Evans explains “freedom” and how to better involve women & people of color

David Evans, director of research advocacy at Project Inform, talks about an ambitious HIV cure social science research project that will investigate some of the ethical and moral dilemmas cropping up in HIV cure research.

09 February 2017
BETA blog
NHS hands over patient records to Home Office for immigration crackdown

Number of government requests to access confidential non-clinical details rises threefold since 2014 in drive to track down immigration offenders

25 January 2017
The Guardian
Why the C.D.C.’s Power to Quarantine Should Worry Us

The Centers for Disease Control and Prevention issued new regulations this month that give it broad authority to quarantine Americans. The rules outline for the first time how the federal government can restrict interstate travel during a health crisis, and they establish in-house oversight of whether someone should be detained, without providing a clear and direct path to challenge a quarantine order in federal court.

24 January 2017
New York Times
Vladimir Putin drops plan to fine Russians who refuse to sign government HIV register

Health Ministry says 824,000 of the estimated 850,000 HIV-positive people in Russia have already been added to the registry.

23 January 2017
The Independent
Russia: Federal register of HIV patients to be launched on January 1

The Federal Register of HIV patients, set to be launched in Russia's regions on Jan. 1, will help provide patients with medicine, Health Ministry Spokesman Oleg Salagai told TASS. 'Any individual diagnosed with HIV should be interested in being included in this register since he or she will receive medicine on this basis,' Salagai explained.

03 January 2017
Kenya court halts HIV data collection

A Kenyan high court has ruled that a government directive to collect data on HIV-positive schoolchildren and pregnant women is unconstitutional. It said the move violated the rights and privacy of those living with HIV.

08 December 2016
BBC News
Kenyan churches demand HIV test for couples wanting to marry

Some Kenyan churches are demanding premarital HIV testing before weddings, a trend activists warn is infringing on the rights of people living with HIV and AIDS.

03 October 2016
The Catholic Register
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Community Consensus Statement on Access to HIV Treatment and its Use for Prevention

Together, we can make it happen

We can end HIV soon if people have equal access to HIV drugs as treatment and as PrEP, and have free choice over whether to take them.

Launched today, the Community Consensus Statement is a basic set of principles aimed at making sure that happens.

The Community Consensus Statement is a joint initiative of AVAC, EATG, MSMGF, GNP+, HIV i-Base, the International HIV/AIDS Alliance, ITPC and NAM/aidsmap

This content was checked for accuracy at the time it was written. It may have been superseded by more recent developments. NAM recommends checking whether this is the most current information when making decisions that may affect your health.

NAM’s information is intended to support, rather than replace, consultation with a healthcare professional. Talk to your doctor or another member of your healthcare team for advice tailored to your situation.