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Confidentiality, consent and medical ethics news

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Family duty is a powerful force in China. Is that why so many couples signed up for the ‘CRISPR babies’ experiment?

Young adults in China feel a powerful cultural obligation to marry and have kids, but that life plan suddenly looks unattainable to people told they’re infected with HIV, particularly for the many who can’t afford or are unaware of treatments that would allow them to have uninfected children. So when an ambitious scientist offered HIV-positive men and their spouses what seemed to be a way out of this despair, several hundred couples in China jumped at the chance, expressing interest in a clinical trial that promised to deliver them babies forever protected from HIV infections.

Published
15 January 2019
From
STAT
One in 4 women at sexual health clinics reports coercion over their reproductive lives

As many as one in four women attending sexual and reproductive healthcare services say they are not allowed to take control of their own reproductive lives, reveals a review of the available evidence, published today in BMJ Sexual & Reproductive Health. As well as not being able to actively choose whether to use contraceptives, or start or continue with a pregnancy, this 'reproductive control' also takes the form of 'contraceptive sabotage', which includes covert removal of a condom during sex, so invalidating consent, the research shows.

Published
08 January 2019
From
EurekAlert
Malaysian AIDS council slams proposed mandatory HIV tests for non-Muslims

The Malaysian AIDS Council (MAC) has panned a proposal by the women, family and community development ministry to make HIV tests compulsory for non-Muslims intending to tie the knot. In a statement, MAC said conducting compulsory HIV screenings is not an “effective, long-term solution” to combat rising HIV cases, adding that HIV testing should only be done on a voluntary basis.

Published
20 December 2018
From
Free Malaysia Today
New York State May Soon Finally Eliminate Explicit Consent From HIV Testing in Care Settings

Most of the HIV advocacy community in New York City and the state at large now agree that the current law still obstructs testing for health providers -- largely because they find it awkward asking patients if they can test for HIV.

Published
30 November 2018
From
The Body
Q&A: Privacy ‘not keeping pace’ with digital health

The pace of technological advancement in digital health – where smartphones and the internet are being used to personalise health services – is moving faster than policies to ensure people’s data is being protected, according to Patricia Mechael, co-founder of the non-profit organisation HealthEnabled. For example, officials in Tanzania used health records to identify gay men.

Published
29 November 2018
From
Sci Dev Net
Jackie Morton – Disclosure? No exposure!

Sharing your HIV status ought to be a personal choice in every case and our decision not to disclose our status to our two sons survived for nine years until my admission to hospital on 5 November 2018 following a heart attack.

Published
22 November 2018
From
EATG
Community Recommendations for Clinical Research Involving Antiretroviral Treatment Interruptions in Adults

Scientists working to develop a cure for HIV infection sometimes need to conduct clinical trials in which participants are asked to temporarily interrupt ART, which contradicts the recommendations and guidelines for people with HIV under medical care.

Published
15 November 2018
From
TAG
Home Office scraps scheme that used NHS data to track migrants

The Home Office has abandoned a controversial “hostile environment” scheme using NHS data to track down patients believed to be breaching immigration rules. In the face of a legal challenge brought by the Migrants’ Rights Network, a memorandum of understanding between the Department of Health, NHS Digital and the Home Office is being scrapped.

Published
12 November 2018
From
The Guardian
STEPS V: HIV cure community workshop in Glasgow

STEPS, a community initiative to design the pathway to a long-term remission of HIV infection, has reached its 5th edition in Glasgow. This year the theme of the meeting that was held just before the opening of the HIV Drug Therapy Congress was ‘socio-behavioural science and ethics around HIV cure research’.

Published
01 November 2018
From
EATG
In Miami, A Potential HIV Outbreak Under a Highway Underpass Raises Ethical Questions

Florida’s only legalized syringe access program found 11 people who tested positive for HIV within a six-month period this year. In the city of Miami, where one out of every 85 adults has HIV, the new infections may or may not constitute an outbreak. This is the subject of a local, active public health investigation that utilizes the Center for Disease Control (CDC)’s molecular surveillance system.

Published
23 October 2018
From
AIDS United
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Community Consensus Statement on Access to HIV Treatment and its Use for Prevention

Together, we can make it happen

We can end HIV soon if people have equal access to HIV drugs as treatment and as PrEP, and have free choice over whether to take them.

Launched today, the Community Consensus Statement is a basic set of principles aimed at making sure that happens.

The Community Consensus Statement is a joint initiative of AVAC, EATG, MSMGF, GNP+, HIV i-Base, the International HIV/AIDS Alliance, ITPC and NAM/aidsmap
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This content was checked for accuracy at the time it was written. It may have been superseded by more recent developments. NAM recommends checking whether this is the most current information when making decisions that may affect your health.

NAM’s information is intended to support, rather than replace, consultation with a healthcare professional. Talk to your doctor or another member of your healthcare team for advice tailored to your situation.