YOU ARE HERE:
Children - Appendix 4: Latest bibliography
   Last updated: 23.08.01
SELECTED RESOURCE MATERIAL
CONCERNING CHILDREN AND FAMILIES AFFECTED BY HIV/AIDS

John Williamson

(revised March 17, 2000)

General Material on AIDS-affected Children and Families

Action for Children Affected by AIDS: Programme Profiles and Lessons Learned (Sue Armstrong and John Williamson) WHO and UNICEF, New York, December 1994, 119 pages.

Bor, Robert and Jonathan Elford, eds., The Family and HIV, Cassell, London and New York, 1994, 282 pages.

"Children in a World With HIV/AIDS: New Challenges New Choices," UNICEF, presentation to the UNICEF Executive Board, September 1998 (CD ROM. in PowerPoint, text by Susan Hunter)

"Coping with the Impact of AIDS" in Confronting AIDS: Public Priorities in a Global Epidemic (Mead Over and Martha Ainsworth) World Bank, Oxford Universtiy Press, 1997, pages 173-237.

Donahue, Jill, "Community Mobilization and Microfinance Services as HIV/AIDS Mitigation Tools," prepared for the Displaced Children and Orphans fund of USAID as a supplementary report to "Children Affected by HIV/AIDS in Kenya: An Overview of Issues and Action
to Strengthen Community Care and Support," Displaced Children and Orphans Fund/USAID and UNICEF, 1999.

Donahue, Jill and John Williamson, "Community Mobilization to Mitigate the Impacts of HIV/AIDS, Displaced Children and Orphans Fund, September 1, 1999, 9 pages.

Donahue, Jill, Susan Hunter, Linda Sussman, and John Williamson, "Children Affected by HIV/AIDS in Kenya: An Overview of Issues and Action to Strengthen Community Care and Support," Displaced Children and Orphans Fund/USAID and UNICEF, 1999, 53 pages.

Drew, R.S, C. Makufa, and G. Foster, "Strategies for Providing Care and Support to Children Orphaned by AIDS," AIDS Care, vol. 10, supplement 1, 1998, pp. S9-S15.

Drew, RS, G. Foster, J. Chitima, "Poverty B A Major Constraint in the Community Care of Orphans: A Study from the North Nyanga District of Zimbabwe," SAfAIDS, June 1996, Vol. 4, No. 2., 3 pages.

Elmore-Meegan, Michael, Ronan Conroy, Andrew Tomkins, "AIDS Orphans Study," presentation at the Collaborative Symposium on AIDS research, January 1999, Nairobi Kenya (due for publication).

FAO, The Effects of HIV/AIDS on Farming Systems in Eastern Africa, FAO Farm Management and Production Economics Service, Rome, 1995, 173 pages.

Foster, Geoff and Choice Makufa, "Community Mobilization Best Practices: The Families, Orphans and Children Under Stress (FOCUS) Programme," Family AIDS Caring Trust, Mutare Zimbabwe, 8 pages.

Foster, Geoff; Choice Makufa, Roger Drew; Stanford Kambeu; and Kingstone Saurombe;
"Supporting Children in Need Through a Community-based Orphan Visiting Programme," AIDS Care, 1996, vol. 8, no. 4, pp. 389-403.

Geballe, Shelly, Janice Gruendel and Warren Andiman, eds., Forgotten Children of the AIDS Epidemic, Yale University Press, New Haven and London, 1995, 283 pages.

Hunter, Susan, "Into the 21st Century: Designing Care and Protection Programmes for Children Affected by HIV/AIDS PowerPoint Slide Show and Country Programme Assessment Guide, "UNICEF, 1999, 23.9 MB on CD ROM.

Hunter, Susan, "Sectoral Assessment of the Impact of HIV/AIDS on Education: Initial Planning Guide," (draft) Ministry of Education, Kingdom of Swaziland, April 17, 1999, 25 pages.

Hunter, Susan and John Williamson, "Children on the Brink: Strategies to Support Children Isolated by HIV/AIDS," prepared by the Health Technical Services Project for the United States Agency for International Development, December 1997, 56 pages. (As of September 1999 available at http://www.dec.org Both the executive summary and full version are available. Paper copies can also be ordered at that web address or from Development Experience Clearinghouse, 1611 N. Kent Street #200, Arlington, VA 22209, tel: (703) 351-4006 or fax: (703) 351-4039)

Hunter, Susan and John Williamson, "Responding to the Needs of Children Orphaned by HIV/AIDS, Discussion paper number 7, prepared by the Health Technical Services Project for the United States Agency for International Development, June 1998, 30 pages.

Lee, Tim, Shareck Kagoro, Shana Muzanya, Choice Makufa, Geoff Foster, Rebecca Gonyora, "FOCUS Evaluation Report 1999: Report of a Participatory, self-evaluation of the FACT Families, Orphans and Children Under Stress (FOCUS) Programme," September 1999, Family AIDS Caring Trust, 56 pages.

Levine, Carol. ed., A Death in the Family: Orphans of the HIV Epidemic, United Hospital Fund, 1993, New York, 157 pages.

McKerrow, Neil and A.E. Verbeek, "Models of Care for Children in Distress: The Current Status of Children in The KwaZulu-Natal Midlands and the Nature of the Community Response," Edndale Hospital, KwaZulu-Natal, 1995, 56 pages.

McKerrow, Neil, "Responses to Orphaned Children: A Review of the Current Situation in the Copperblet and Southern Provinces of Zambia," UNICEF Lusaka, Research Brief No. 3, December 1997, 4 pages.

Mutangadura, Gladys, Duduzile Mukurazita, and Helen Jackson, "A Review of Household and Community Responses to the HIV/AIDS Epidmeic in the Rural Area of Sub-Saharan Africa,"

Nampanya-Serpell, Namposya "Children Orphaned by HIV/AIDS in Zambia: Risk Factors From Premature Parental Death and Policy Implications." Dissertation for the PhD degree in Policy Sciences, University of Maryland Baltimore County, Awarded 1998. This dissertation can be downloaded from the web at: http://wwwlib.umi.com/dissertations

UNAIDS, UNICEF, and the National Black Leadership Commission on AIDS, "Call to Action for 'Children Left Behind' by AIDS," December 1, 1999, 4 pages.

UNAIDS Best Practice Collection, June 1999, 67 pages (on August 5, 1999, available at: http://www.unaids.org/highband/bpc/keymaterials/impactagri/una99e39.pdf).

Urassa, Mark; Ties Boerma, J; Ng'weshemia, Japheth; Isingo, Raphael; Schapink, Dick and Kumogola, Yusufu, "Orphanhood, child fostering and the AIDS epidemic in rural Tanzania" Health Transition Review, Supplement 2 to Volume 7, 1997.

Mutangadura, Gladys, and Helen Jackson, "HIV/AIDS and the Young: Three Studies in Southern Africa, SafAIDS News, December 1998, vol. 6, No. 4, 6 pages.

Webb, Douglas, "Orphans in Zambia: Nature and Extent of Demographic Change," AIDS Analysis Africa (Southern Africa Edition), 1995, Vol. 6, No. 2., pp 5-6.

Webb, Douglas, Geoff Foster, Hugo Kamya, Namposya Serpell, "Children Affected by HIV/AIDS: Priority Areas for Future Research," (draft) 1998, 8 pages.

Williamson, John, Children and Families Affected by HIV/AIDS: Guidelines for Action, (draft prepared for UNICEF to be revised and updated 1999, available in draft), October 1995, 120 pages.

Williamson, John, "Finding a Way forward: Prinicples and Strategies for Intervention," Draft, November 2, 1999. Available at: http://www.iaen.org/impact/williamson.pdf

Williamson, John and Jill Donahue, "Developing Interventions to Benefit Children and Families Affected by HIV/AIDS: a Review of the COPE Program in Malawi for the Displaced Children and Orphans Fund," 1996, 50 pages.

Williamson, John and Jill Donahue, "Community Mobilization to Address the Impacts of AIDS: A Review of the COPE II Program in Malawi, January 17-30, 1998," prepared by the Displaced Children and Orphans Fund of and War Victims Fund Project for USAID, June 1998, 44 pages.

World Bank, Confronting AIDS: Public Priorities in a Global Epidemic (Mead Over and Martha Ainsworth) Oxford University Press, 1997, pages 173-237.

Papers from the, Southern African Conference, "Raising the Orphan Generation," organized by CINDI in Pietermaritzburg, 9B12 June 1998 and available (as of August 4, 1999) at:

http://www.togan.co.za/cindi/


Available from UNDP HIV and Development Programme (as of August 5, 1999) at:

http://www.undp.org/hiv/studylis.htm

From Single Parents to Child-Headed Households: The Case of Children Orphaned by AIDS in Kisumu and Siaya Districts, 1998


Also available from UNDP at:

http://www.undp.org/hiv/issuesli.htm

Children in Families Affected by the HIV Epidemic: A Strategic Approach, Issues Paper # 13 (also available in French)
by Elizabeth Reid

Links to resource material on children orphaned by AIDS are included on the web site of the Francois-Xavier Bagnoud Association at: http://www.fxb.org/orphinfo.html#resources

Bibliographies
HIV/AIDS Bibliography: An Annotated Review of Research on HIV/AIDS in Zambia, UNICEF and National AIDS/STD/TB and Leprosy Programme, 1996, (includes 10 listings on orphans, most unpublished)

A Selected Bibliography," Family AIDS Caring Trust, Mutare, Zimbabwe, 5 pages.

SITUATION ANALYSES AND ASSESSMENTS

"Family Coping and AIDS in Zimbabwe: A Study," Research Unit Series No. 4, Research Unit, School of Social Work, Harare, 1994, 72 pages.

"Final Report: Operational Research on the Situation of Orphans within Family and Community Contexts in Uganda," September - December 1993, Ministry of Labour and Social Affairs, Uganda Community-Based Association for Child Welfare, UNICEF Uganda, 128 pages.

Mutangadura, Gladys, Duduzile Mukurazita, and Helen Jackson, "A Review of Household and Community Responses to the HIV/AIDS Epidmeic in the Rural Area of Sub-Saharan Africa," UNAIDS Best Practice Collection, June 1999, 67 pages.

Paul Saoke and Roselyn Mutemi, "Needs Assessment of Children Orphaned by AIDS: Final Report," 1994, 58 pages.

Susan Hunter, "National Assessment of Families and Children Affected by AIDS," draft, Tanzania AIDS Project, August 1, 1994, 184 pages plus attachments.

Webb, Douglas, "Children in Especially Difficult Circumstances (CEDC) in Zambia: A Situation Analysis," in SAfAIDS News, Vol. 4, No. 1, March 1996, pp. 2-6.


SOCIO-ECONOMIC IMPACTS OF HIV/AIDS AND RESPONSES

"Coping with the Impact of AIDS, in Confronting AIDS: Public Priorities in a Global Epidemic, The World Bank, Oxford University press, 1997, 65 pages.

Donahue, Jill, "Community-based Economic Support for Households Affected by HIV/AIDS," prepared by the Health Technical Services Project for the United States Agency for International Development, June 1998, 31 pages.

Delroix, Sylvie et Agnès Guillaume, Le Devenir de Familles Affectées par le SIDA: Une Étude de Cas en Côte-d'Ivoire," chapitre 17 dans Pion, Marc, Thérèse Locoh, Émilien Vignikin and Patrice, Vimard, "Ménages et Familles en Afrique: Approches des Dynamiques Contemporaines," Les Dossiers du CEPED no 15, 1997, pp. 345-369.

Intensifying Action Against HIV/AIDS in Africa: Responding to a Development Crisis, Africa Region, The World Bank, August 1999, 90 pages.

Wright, Graham A.N., Deborah Kasente, Germina Ssemogerere, and Leonard Mutesasira, "Vulnerablity, Risks, Asssets and Empowerment: The Impact of Microfinance on Poverty Alleviation," Final report, March 1999, MicroSave-Africa, 56 pages.

[See also " Useful Material Not Specific to HIV/AIDS " below.]

Specific Issues

LAW AND POLICY

Herb, A., "The New York State Standby Guardianship Law: A New Option for Terminally Ill Parents," Levine, C. ed., Orphans of the HIV Epidemic, United Hospital Fund of New York, 1993, pp. 87-93.

Pinot, M., "Custody and Placement: The Legal Issues," Levine, C. ed., Orphans of the HIV Epidemic, United Hospital Fund of New York, 1993, pp. 75-84.

"Policy Guidelines for the Care of Orphans in Malawi and Coordination of Assistance for
Orphans," Task Force on Orphans, Ministry of Women and Children Affairs and Community Services, Government of Malawi, July 1992, 9 pages.

"Property-grabbing: Why Zambia Needs Stronger Laws to Protect Widow's Rights," AIDS Analysis Africa, Vol. 4, No. 4, July/August 1994, pp. 1&7.

PSYCHOSOCIAL ISSUES

Dane, B., "Mourning in Secret: How Youngsters Experience a Family Death from AIDS," Levine, C. ed., "Orphans of the HIV Epidemic," United Hospital Fund of New York, 1993, pp. 60-68.

Dudley, R., "All Alike but Each One Different: Orphans of the HIV Epidemic," Levine, C. ed., Orphans of the HIV Epidemic, United Hospital Fund of New York, 1993, pp. 56-59.

Draimin, B., "Adolescents in Families with AIDS: Growing Up with Loss," Levine, C. ed., Orphans of the HIV Epidemic, United Hospital Fund of New York, 1993, pp. 13-23.
"How Children React When a Family Member Has AIDS," [English and Spanish] a brochure produced by Beth Israel Medical Center in New York City.

Kamya, Hugo,"Bereavement Issues and Spirituality," submitted for publication July, 1998, 23 pages.

Kamya, "Groupwork with Children from HIV/AIDS-Affected Families," Journal of HIV/AIDS Prevention & Education for Adolescents & Children, Vol. 1(2) 1997, pp. 73-91.

McKelvy, L., "The Well Children in AIDS Families Project: A Hospital-based Program," Levine, C. ed., Orphans of the HIV Epidemic, United Hospital Fund of New York, 1993, pp. 104-109.

Mayer, R., "When the Butterfly Dies: The Loss of a Parent to AIDS," Levine, C. ed., Orphans of the HIV Epidemic, United Hospital Fund of New York, 1993, pp. 27-35.

Sampa-Kamwendo, Annie, Thomas Syamujaye and Jonathan Brakarsh, "Manual for Psychosocial Counselling," Children in Need Network (CHIN), July 1998, 73 pages.

Siegel, K. and Gorey, E., "Childhood Bereavement Due to Parental Death from Acquired Immunodeficiency Syndrome," Journal of Developmental and Behavioral Pediatrics, supplement: "Priorities in Psychosocial Research in Pediatric HIV Infection, eds. Bauman, L. and Wiener, L., Vol. 15, No. 3. June 1994, pp. 66-69.

[See also " Useful Material Not Specific to HIV/AIDS " below.]

Guidelines
Because You Love Them: A Parent's Planning Guide, Child Welfare League of America, 1994, 74 pages.
Newsletters

PCI Orphans and Vulnerable Children Programme Update, Project Concern International Zambia (e-mail: concern"amnet.zm)


VIDEOS

Everyone's Child, produced in Zimbabwe by Media for Development Trust, 1996, 90 minutes. There is also a 20 minute training video drawn from the film with written material. Available from DSR dsr@us.net http://www.catalog.com/dsr/film.htm

The Orphan Generation, produced by Small World Productions, 10 and 40 minute segments. Can be ordered through UNICEF web site: http://www.unicef.org Click on catalogues and follow the instructions regarding ordering forms. The Orphan Generation is not listed on the web site, but just fill in the title in the order form.

USEFUL MATERIAL NOT SPECIFIC TO HIV/AIDS

MkNelly, Barbara and Christopher Dunford, "Are Credit and Savings Services Effective Against Hunger and Malnutrition?—A Literature Review and Analysis," Research Paper No. 1., Freedom from Hunger, February 1996, 51 pages.

Tolfree, David, Roofs and Roots: The Care of Separated Children in the Developing World, Arena, Ashgate Publishing, Harts, England, and Brookfield, Vermont, USA, Save the Children Fund (UK), 1995, 251 pages. Arena, Ashgate Publishing Limited, Gower House, Croft Road, Aldershot, Hants GU11 3HR, England: Ashgate Publishing Co., Old Post Road, Bookfieid, VT 05036, USA tel: (802) 276-3162. (available through http://www.amazon.com )

“Promoting Psychosocial Well-being Among Children Affected by Armed conflict and Displacement: Principles and Approaches,” Working Paper N. 1, Working Group on Children Affected by Armed Conflict and Displacement, Save the Children Federation, 1996 (available from Save the Children, 54 Wilton Road, Westport CT 06880).

Tolfree, David, Restoring Playfulness: Different Approaches to Assisting Children who are Psychologically Affected by War or Displacement, Radda Barnen (Swedish Save the Children), 1996, 212 pages. ( http://www.childrightsbookshop.org/ )

Wright, Graham A.N., Deborah Kasente, Germina Ssemogerere and Leonard Mutesasira, "Vulnerability, Risks, Assets and Empowerment - The Impact of Microfinance on Poverty Alleviation," Final Report, March 1999, MicroSave-Africa (funded by UNDP and DFID), 90 pages.