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Home Care - 2.5.1 In-depth interviews with patients and families
2.5.1 In-depth interviews with patients and families
In Phnom Penh, each of the 10 Home Care Team Co-ordinators provided a list of patients who were currently being visited by their team. The Co-ordinators were asked to exclude non HIV/AIDS patients and those who were hospitalised or too ill to be able to answer questions. Ten patients were randomly selected from the list for each of the 10 teams, providing a sample of 100. It is estimated that there are approximately 500 patients who would have been suitable for interview, so the study sample represents some 20% of the population.
Of the 100 PLHA who were interviewed, 43 had family members present during the interviews, and a further 22 were accompanied by caregivers from outside the family. Specific questions in the interview guide were directed to these family members and caregivers.
The 100 in-depth interviews were conducted by 10 interviewers (10 interviews each) drawn from the Home Care Team Co-ordinators. The interviewers were supervised throughout the data collection period by 3 members of the Evaluation Team and the Alliance TA (C&S). The interviews were allocated by the Evaluation Team to ensure that the Team Co-ordinators did not interview patients from their own teams. Members of the Home Care Teams accompanied the interviewers to the homes of the selected patients, but stayed outside during the interviews
The interviewers used a semi-structured questionnaire with both closed and open-ended questions (see Appendix 1a). The questionnaire was developed by the Evaluation Team with technical input from NIPH, NCHADS, KHANA and the Alliance. The questionnaire was translated into Khmer and pretested using home care patients not selected in the interview sample. The interviewers were trained by the Evaluation Team in interview techniques and how to use the questionnaire and were given practice in acting as interviewer and respondent.
The Evaluation Team supervised approximately one third of all the interviews conducted and reviewed the interviews immediately afterwards with the interviewers. Many of the interviewees lived in conditions of poverty, sometimes extreme poverty. Some were sex-workers, and a significant number were homeless. It was difficult, sometimes impossible, to conduct some of the interviews with any degree of privacy. Neighbours and/or family were often present and the interviewers sometimes had to change the subject or postpone sensitive questions until there was a greater measure of privacy. However, the supervisors and interviewers reported that confidentiality was often less of an issue than might have been expected. Many of those interviewed were extremely open about their HIV status, and this seemed to be accepted by neighbours and relatives without comment or evidence of discrimination.
In Battambang, the members of the Evaluation Team conducted eight interviews with patients and families drawn from different communities throughout Moung Russey district where the KRDA Home Care Team operates. Convenience sampling was used to select the patients. The number of interviews was restricted by the limited time spent in Battambang, and the long distances travelled between interviews.
In Phnom Penh, each of the 10 Home Care Team Co-ordinators provided a list of patients who were currently being visited by their team. The Co-ordinators were asked to exclude non HIV/AIDS patients and those who were hospitalised or too ill to be able to answer questions. Ten patients were randomly selected from the list for each of the 10 teams, providing a sample of 100. It is estimated that there are approximately 500 patients who would have been suitable for interview, so the study sample represents some 20% of the population.
Of the 100 PLHA who were interviewed, 43 had family members present during the interviews, and a further 22 were accompanied by caregivers from outside the family. Specific questions in the interview guide were directed to these family members and caregivers.
The 100 in-depth interviews were conducted by 10 interviewers (10 interviews each) drawn from the Home Care Team Co-ordinators. The interviewers were supervised throughout the data collection period by 3 members of the Evaluation Team and the Alliance TA (C&S). The interviews were allocated by the Evaluation Team to ensure that the Team Co-ordinators did not interview patients from their own teams. Members of the Home Care Teams accompanied the interviewers to the homes of the selected patients, but stayed outside during the interviews
The interviewers used a semi-structured questionnaire with both closed and open-ended questions (see Appendix 1a). The questionnaire was developed by the Evaluation Team with technical input from NIPH, NCHADS, KHANA and the Alliance. The questionnaire was translated into Khmer and pretested using home care patients not selected in the interview sample. The interviewers were trained by the Evaluation Team in interview techniques and how to use the questionnaire and were given practice in acting as interviewer and respondent.
The Evaluation Team supervised approximately one third of all the interviews conducted and reviewed the interviews immediately afterwards with the interviewers. Many of the interviewees lived in conditions of poverty, sometimes extreme poverty. Some were sex-workers, and a significant number were homeless. It was difficult, sometimes impossible, to conduct some of the interviews with any degree of privacy. Neighbours and/or family were often present and the interviewers sometimes had to change the subject or postpone sensitive questions until there was a greater measure of privacy. However, the supervisors and interviewers reported that confidentiality was often less of an issue than might have been expected. Many of those interviewed were extremely open about their HIV status, and this seemed to be accepted by neighbours and relatives without comment or evidence of discrimination.
In Battambang, the members of the Evaluation Team conducted eight interviews with patients and families drawn from different communities throughout Moung Russey district where the KRDA Home Care Team operates. Convenience sampling was used to select the patients. The number of interviews was restricted by the limited time spent in Battambang, and the long distances travelled between interviews.
